KC just had a clean EEG, but this video shows obvious seizure behavior. The neuro only saw a small clip of this and he is guessing complex partial or partial, absence and myoclonic. I am worried now that KC has been seizing all along because several times I thought he was but took him in for an EEG and after it was clean I wrote it off as sensory or something else. This time it is undeniable. Not sure if we will need another med now with the Zonegran. Friday we see the neuro and he will see this entire video.
All truth goes through three stages. First it is ridiculed. Then it is violently opposed. Finally, it is accepted as self-evident . Facts are stubborn, and refusal to accept them does not avoid their inexorable effects-the tragic consequences are now upon us - Hellen Keller. The time has come for everyone to step up and be an advocate for our children. It is no longer enough to simply ask questions. We need to demand answers.
2 comments:
Poor little fella.
Hope the Dr's have some answers and suggestions for you.
Thanks so much for checking out Colby's blog...I have really enjoyed making contacts with other parents...I have just read your's and watched the videos, et....
I am so sorry that you are having to deal with all of this....I remember 24 years ago when Colby was 6 weeks old and due his first set of vaccinations...We were already dealing with some issues (possible emlarged ventricles)....So our neurosurgeon postposed all vaccines until after age 2...Even that long ago, there was some concern there...We did go ahead with all vaccines over the next years after age 2 with no direct consequences, thank the Lord (his mental and physical delays were already full-blown...And the seizure disorder didn't begin until age 8...)...But I often woder what might have happened if we had had a different physician....Could things have been made worse?
Thanks so much for your blog....I will continue to follow it...
Cyndi (Colby's mom)
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