More Beautiful Than Tragic

Here is the new video I made with the iMovie program. Let me know what you think :)

More Beautiful Than Tragic

Coming soon......

I made this video during an Apple training seminar I was at for work. We had about 10 or so minutes to "play" after he taught us how to do it. I can't wait to spend some more time with the iMovie program!

Book Club

In an effort to try to be a well rounded blogger, I am trying to think of ideas for weekly features. One idea I had, is to post book reviews. Reading is such an awesome way to escape the pressures of raising a special needs child, or any child for that matter.

I recently picked up a book that was not exactly my type, but once I started it I couldn't put it down! Its called Time of My Life by Allison Winn Scotch. It is the story of a woman who has the picture perfect life. Successfull husband, healthy daughter, and a nice home. But she can't stop wondering....what if. What if she stayed with Jackson, her passionate ex boyfriend, instead of marrying predictable Henry.

Honestly, I can relate. Don't get me wrong, I would not change the path that led me to the life I have now, but don't ya ever...wonder?

Jillian does. And before she knows what is happening, she is back in her IKEA furnished apartment, with Jackson. Each decision she makes in her "new life" sets on a trajectory that mirriors neither her memories or her imagination.

Taken from the book cover:

Time of My Life is a fabulous, madcap read, but don't be fooled. Allision Scotch's narrator is wrestling with some tough issues: How do I find my place in the world? Can I become a wife and a mother without loosing myself? Would I have been happier if I had chosen another path?

I think these are questions that, if we are being honest with ourselves, we have all at least considered. Check out this story, and when you are done, let me know how you would answer the questions that Jillian asks herself in this book, and if your perspective has changed after reading...


http://www.amazon.com/Time-Life-Allison-Winn-Scotch/dp/0307408574

Fun, seizures, and other significant happenings...

I have learned that a weekend of fun with seizures, is still a weekend of fun! We took KC to Key Lime Cove, which is a resort near Gurnee that has an indoor water park. Let me rephrase that...a HUGE indoor water park, which KC happened to LOVE!!



Lets rewind a bit to before we even got there. We told KC about a week in advance that we were going to to the waterpark and he got ridicilously excited . 

But he was able to understand that we were not going today, and that we would have to wait until next week. He understood!! This is huge. We used to have to wait until it was time to leave to tell him anything, otherwise he would flip out.

Instead, we got to experience a week of excitement with him. Watching the video on the computer of what it looks like, counting down days, etc. Until that day finally arrived, and the first thing he said is "today means key lime cove?" It felt so good to be able to say yes!

He loved the big waterslides, and as far as KC is concerned, the bigger and faster, the better.

The Lazy river was fun too...

We all had a blast, KC, me, Ree (Grandma) and Uncle Kevin. When KC made a weird face, or funny movements, we all tried to avoid eye contact with each other. We didn't want to notice the seizures during all the fun.

But they were there, in overdrive. Mostly due to overstimulation, I think. But I tried not to worry because our hearts, each one of them, needed this break from the daily heartbreak. And because I think if KC could communicate this to us, he would tell us he wants to have fun and forget about the seizures for now. Fun now, worry later.

So that is what we did.

In the midst of the fun we were having, we ran into the Easter Bunny hanging out in our hotel! KC loves the Easter Bunny and got his much anticipated high five from him.

We all slept in one hotel room, which made KC so happy. The first thing he said when he woke up was "What day it is today?" Ree-"Its Sunday" KC, in a sweet, just woke up but super excited voice "Its a my uncle Kevin here day?" Uncle Kevin-heart melts and he opens his bedcovers for KC to crawl in :)


After more swimming fun, and a long ride home I realized that the seizures would be here on Monday, but those moments would be memories not to be had again. So I am glad I decided that a weekend of fun and seizures is still a weekend of great fun!

See you next year (hopefully) Key Lime Cove. We will be there, and seizures or no seizures, we will be ready for a great time!

I must have been a beautiful baby...; )

Trick or Treating Fun

Enough pictures, can we go yet??


Awe...he's doing it himself!


And to think last year we had to carry them to the door!


We are tired now!


Now let me at the candy!

A Very Happy Halloween

My little puppy is such a ham...

And Gran sure is happy....

And Mommy has a lot to smile about...


Because.....

KC's EEG was NORMAL!!!




Happy halloween everyone!

It only takes two words...

to melt my already soft heart. After another gut wrenching evening of KC crying, I opened the yogurt he requested. I stuck the spoon in and he freaked. I realized he wanted to feed himself. I handed him the spoon, and he started shoveling it in. The sobs subsided. I looked at him and smiled. I didn't expect him to respond at all, but his eyes met mine and he smiled back. With barely more than a whisper I heard him say, Hi Mama. Tears filled my eyes. I got a glimpse of my son at that moment. He's in there, he just needs me to find him.
KC, keep smiling baby. I know it's hard, but when you can smile, I'll be here to smile back. I love every second of it. You are beautiful inside and out.